All Grown Up! Applying Lessons Learned from Cystic Fibrosis across Prenatal, Pediatric, Adult, and Cancer Settings

This is a comprehensive session exploring the evolving landscape of cystic fibrosis (CF) care across the lifespan. Dramatic advances in therapeutics has led to transformations in many people with CF but it has also heightened awareness of disparities in care and unexpected outcomes that will be addressed through the lived experience of a person with CF. By understanding the challenges and opportunities in CF care, genetic counselors can anticipate similar issues in other conditions and contribute to improved patient outcomes through informed counseling and support.

Presented by:

1. Elinor Langfelder-Schwind, MS, CGC
2. Brooke Moore, MD, MPH
3. Richard T. Caldwell

Learning Objectives:

1. Analyze how Cystic Fibrosis (CF) is screened and diagnosed through biochemical and molecular technologies.
2. Discuss communication strategies for CFTR variant results across multiple specialties.
3. Evaluate current therapies for CF and the impact of these on health outcomes.
4. Illustrate the implications of changes to CF-related care through the lived experience of a person with CF.

Continuing Education Unit Approval:

The National Society of Genetic Counselors (NSGC) has authorized the National Society of Genetic Counselors (NSGC) to offer up to .15 CEUs or 1.5 Category 1 contact hour for the activity, All Grown Up! Applying Lessons Learned from Cystic Fibrosis across Prenatal, Pediatric, Adult, and Cancer Settings. The American Board of Genetic Counseling (ABGC) will accept CEUs earned by participating in this program for the purposes of genetic counselor recertification.

Successful Completion:

1. View recording
2. Pass quiz
3. Complete evaluation