Compassion in Complexity: Equipping Parents to Navigate a Genetic Diagnosis

Diagnosis - it's not a point in time for parents; it's a journey involving myriad medical specialists and requiring on-going support for the family's psycho-social and emotional needs. Caring in the face of medical complexity requires compassion and understanding of the emotional landscape of parents. In this session, two parents -- representing a pre-natal and post-natal diagnosis -- will highlight the benefits to the family's well-being of a strong partnership between genetic counseling and pediatric palliative care. 

Presented by: 

NSGC Inpatient SIG
1. Jennifer Siedman M.Ed
2. Lindsey Topping Schultz 

Date:

March 19, 2025 

Learning Objectives: 

1. Consider inflection points beyond the diagnosis where continued support of a genetic counselor could improve the well-being of the family.
2. Realize the spectrum of psycho-social and emotional issues that parents of seriously ill children confront.
3. Understand the role of pediatric palliative care to support families of seriously ill children.
4. Identify ways that Courageous Parents Network can be used to support families, including helping them understand the role of genetic counseling 

Continuing Education Unit Approval: 

The National Society of Genetic Counselors (NSGC) has authorized the National Society of Genetic Counselors (NSGC) to offer up to .1 CEUs or 1 Category 1 contact hour for the activity, Compassion in Complexity: Equipping Parents to Navigate a Genetic Diagnosis. The American Board of Genetic Counseling (ABGC) will accept CEUs earned by participating in this program for the purposes of genetic counselor recertification.

Successful Completion: 

1. View recording
2. Pass quiz
3. Complete evaluation