National Society Of Genetic Counselors
Unraveling the Mystery: The Evolving Story of Li-Fraumeni Syndrome
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- Non-member - $50
- Member - $35
Unraveling the Mystery: The Evolving Story of Li-Fraumeni Syndrome Presented by: 1. Lawrence Ingrassia, BA 2. Joshua Schiffman, MD 3. Greg Harper This session will delve into the evolving landscape of Li-Fraumeni Syndrome (LFS), highlighting how our understanding of this syndrome has changed over time, especially with the advent of multi-gene panel testing. Attendees will gain insight into LFS as a spectrum of cancer risks, learn about current medical management guidelines, and discover the latest advancements in research. Lawrence Ingrassia, author of A Fatal Inheritance, will share his personal journey through his family's experience with LFS. The session will also emphasize the critical role of advocacy organizations in supporting families and driving forward research and awareness and hope for the future. Learning Objectives: 1. Summarize the current landscape of LFS including the latest medical management recommendations and advancements in research 2. Identify key lessons from Ingrassia's personal narrative that genetic counselors can apply to their own practice in addressing the complex psychosocial and clinical needs of patients and family members with LFS and other similar hereditary syndromes 3. Describe the important role that patient advocacy groups play in providing patient support and education and promoting research The National Society of Genetic Counselors (NSGC) has authorized National Society of Genetic Counselors (NSGC) to offer up to 1.5 Category 1 contact hours for Unraveling the Mystery: The Evolving Story of Li-Fraumeni Syndrome. The American Board of Genetic Counseling (ABGC) will accept CEUs earned at this program for the purposes of genetic counselor certification and recertification. Successful Completion: 1. View recording 2. Pass quiz 3. Complete survey
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